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“When you spend a lot of time in a hospital and you know a lot of other people with your condition you start to see patterns emerge in the way that they take care of themselves.  I saw these two different extremes: There were these patients who did not give any sh*ts and just never did their treatments, were completely un-compliant, would hide under their covers and not talk to any of the doctors, and were pretty much just giving a giant, “F U” to life — and then there were the patients who were overly compliant, that were perfect with their treatments, that were perfect with their health care, and wanted so desperately to be a good patient.  And I saw both of these extremes fail.  I saw people who spent every single waking hour of the day focusing on their health and trying to get better and I saw them pass away before I did.  I saw them pass away without having become anything more than just a patient.  I saw them pass away without having made anything in the world that they were proud of.  And of course the other end didn’t work either because they happened to die as well.  So I was trying to find some kind of balance.  If I only lived to get better, if I only lived for fixing myself, for getting healthy—then what was I actually contributing to the world?” ~ Claire Wineland (20), EEM LA 2018

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